Thursday, October 22, 2009
Time is flying by!
One week into that program we bought our new house. I took off the first Friday of my teaching program to be able to go to closing, however the bank had screwed up and closing didn't take place until the following Monday. Quite a bummer to be honest since I had to work and wasn't able to attend. But now we own this house and we have started to move our stuff over, pack, sort out, buy new things, figure out what goes where and the whole shamoly. I must admit that I do not necessarily love this house, if I had been there for the first visit I would not have picked it myself. I just hope that I will like it better once that ruthless carpet is out and all our stuff is in and everything. Either way our big moving day is scheduled for Saturday, I hope we will be able to move everything out of the rental house and stay over at the new house. I think the distance between them is about 15 miles. And that is just moving from Northwest Houston to West Houston. Imagine that in Germany guys! lol
My new students are all ladies which is quite a relaxing at this point. One person is a Russion war rocket engineer. I go to her house 3 times a week and really enjoy working with her. She is very chatty and there is never a dull moment. The other student I have is a little more shy, but she is starting to open up. Both ladies' husbands work for Exxon which is one of Berlitz's biggest customers here. I will have more students soon I was told, I'm up for it. I really enjoy teaching for Berlitz. In late November I will go back to the company I tought the Venezuelan Don Juans for. Turns out they specifially requested that I teach them. I don't even want to know what my old students told them!!! LOL
Today I am off which is the only reason I actually got around to write on here. Things are pretty hectic and not as organized as I'd like them to be. I think Jim did not leave me a key for the new house here so I probably won't be able to go there today but there is always more packing to do. Honestly, when everything is in its place it really doesn't seem like you have a whole bunch of stuff but when you have to box everything up there is just no end in sight! It is getting pretty empty here but the new house won't fill up quite yet. That is because it is almost 200 squaremeters which is almost twice the size of our rental place here. I'm sure we'll find more stuff to put in though, we already have some ideas.
I'll try to write more regulary again, I promise. And here are a few pictures of the new house everyone has been itching for! ;) Those were taken with the old owner's stuff still in so please do not doubt our furniture taste! hehe Hope all is well with everyone. Take care y'all!
Love,
Julia
Sunday, September 6, 2009
Yum! Yum! In my tum!
Rouladen with Spätzle, my favorite!
Zwetschgendatschi
Spaghetti icecream
REAL cappuchino
Pretzel
Sauerbraten
Some chops with mushrooms and Spätzle
maccaroni nests
duck, pork roast and chicken with dumplings and roll
Pork chops in creamy mushroom sauce with potatos
And for the curious ones (and because I keep getting bugged about it, I'm telling it like it is! lol), this is what my neck looked like about 4 weeks ago. It is the most recent picture of my neck that I have. Now the scar is a bit pinker and thus paler again. Hooray for fast healing!
And you wondered why I had to pay €150 for a third bag? Well, let me put it this way: I did a little shopping! What I got, or actually most of it, some stuff is not in the picture, you can see here. Along with me a.k.a. Zenzi. Talking about not taking yourself seriously! This is an apron my mother bought for me. Thanks, mother, for your contribution to cross-cultural understanding! :)
Friday, September 4, 2009
Indulgence
My life was centered on such vital thoughts for the longest time, it is a blessing now to pretty much waste time on something as little and insignificant as weight loss. I have put on quite a bit of weight ever since I have been on the low iodine diet (the trip to Germany didn't make things better in that aspect, either), and now I am trying to change that. Low fat regime it is again. As always, at first rather strict, once I'll have reached a certain goal I can go easier on myself. So far it is pretty fun still and the husband is willing to go along which makes late night walkathons a lot more likely to happen. Last night we walked for an hour, as always actually doing it was not a kicker for me, but the feeling of accomplishment afterwards was.
My little workouts feel a lot better now than they used to, though. I think it has to do with the fact, that I couldn't do anything physical for months due to the neck surgery and now I feel as good as new. My neck is still numb in an area about as big as my palm and I still feel some constriction from the scar tissue and yadda yadda yadda but other than that I feel good. I am a little worried that my hormone pills contribute to the weight gain so therefore I am all the more motivated to do as much as humanly possible to reverse the weight gain.
I have a lot of stuff going on right now, most of which I don't want to talk about here. I do still feel homesick and I hope very much, that it will get better soon. I miss my family and friends, going for walks anywhere, feeling so safe, the food, public swimming pools, the weather...I miss a lot about home. I just feel like an uprooted plant here. Especially having no friends really sucks. I really want to make new friends and I hope once I return to work I'll be able to make friends.
I still haven't uploaded any pictures but will do so at some point. HAHA! Isn't that what I always say...
Love, Julia
Tuesday, August 25, 2009
Goodbye Germany!
Im Moment bin ich relativ unschlüssig, was ich heute noch anstellen soll. Ich muss zugeben ich fremdel ein bisschen, hab Heimweh nach Deutschland und fühl mich nicht so, als wäre ich wieder Zuhause angekommen. :o( Ich denke das legt sich bestimmt mit der Zeit, wenn ich erst wieder mehr zu tun habe, aber im Moment steckt mir der Abschied noch sehr in den Knochen. Die Zeit in Deutschland war einfach zu schön. Die Ausflüge an den Chiemsee, auf den Arber und an den Arbersee, nach München, Regensburg, Köln und in die Tschechei (ja, ich weigere mich weiterhin standhaft Tschechien zu sagen!) und natürlich die vielen Treffen mit meinen lieben Freunden und Verwandten. Meine Heimat und alles was dazu gehört wird immer einen besonderen Platz in meinem Herz haben, aber jetzt möchte und muss ich mich auf Houston konzentrieren und mit dem Leben dort weiterwurschteln.
Die Gedanken an meine Krankheit treten langsam aber sicher immer mehr in den Hintergrund und ich bin überhaupt nicht traurig darüber. Ich blicke nach vorne und freue mich auf das, was da kommen mag. Aber groß planen werde ich nicht mehr, denn unverhofft kommt oft.
Ich hoffe ich kann mich bald überwinden meine Deutschlandfotos auf den Computer zu laden. Habe doch jede Menge Essensfotos und Zenzischnappschüsse zu zeigen. ;o) Nun denn, ich hoffe euch allen geht es gut. Und Mama, sei nicht traurig, dass ich fort bin, sondern freu dich, dass ich da war...
Brav bleim, ihr Lieben!
Julia
Tuesday, August 11, 2009
Bin im Freizeitstress
Ich bin viel unterwegs, am Wochenende war ich beispielsweise mit meiner Mama in Koeln. Es war ein superschoener Miniurlaub von dem ich noch lange zehren werde. Wir haben nicht nur die Lindenstrasse angeschaut (und bei Klausi Beimer geklingelt) sondern auch viel gelacht und Koelsch getrunken (das eine hing eventuell mit dem anderen zusammen hihi).
Mein Leberkaessemmeldefizit habe ich erfolgreich ausgeglichen und auch die anderen Leckereien habe ich mir schon ordentlich zu Gemuete gefuehrt. Ich denke mir aufs Essen aufpassen und die angefutterten Pfunde zum Schmelzen bringen kann ich auch noch wenn ich wieder in USA bin.
Es wird noch ein paar Tage dauern, bis ich wieder arbeiten kann und eventuell bei der Sprachenschule anfange, da kann ich mich dann darauf wieder konzentrieren. Aber die Gedanken an Houston schiebe ich noch recht weit weg, zu schoen ist die Zeit hier. Ausser der Hauskauf, ja der Hauskauf...wir suchen immer noch wie wild nach einer Bleibe und hoffen sehr, dass wir vor Mietvertragsende in 2 Monaten noch was finden. Wir sind beide mittlerweile ziemlich bocklos unf wollen einfach nur was finden, hoffe wir schaffen das bald.
Ich trage mich auch mit dem Gedanken nun doch weiter zu studieren. Ich muss mich noch mehr in die Materie einarbeiten, waere aber durchaus an einem Lehrerstudium (Ich weiss! Ich und Lehrerin! Wer haette es je fuer moeglich gehalten!!!) interessiert. Muss noch herausfinden wie wo wer wann was, aber damit werde ich mich beschaeftigen sobald ich wieder in meinem amerikanischen Zuhause bin.
Bald stell ich auch wieder Fotos hier rein, muss doch angeben mit meiner Supernarbe, die verheilt wie die Sau! :-)
Ich hoffe euch allen gehts gut. Hopfen und Malz, Gott erhalts! In diesem Sinne vielen Dank fuer die Aufmerksamkeit, Auf Wiedersehen!
Thursday, July 30, 2009
Wednesday, July 29, 2009
Note from a small country
Bis bald, bleibts brav! :)
Love, Julia
Tuesday, July 21, 2009
It has been a while...
Anyway, due to this, I will privatize my blog in the near future. If you are interested in reading, just give me your e-mail address and I probably will send you a password or an invitation to read, I still need to figure out what exactly I can do on here. (Mama don't worry, you are covered!)
I am doing well, will tell more once privatized. Take care!
Love, Julia
Monday, July 13, 2009
One week in
I'll have my second therapy session later today, I am looking forward to it. The therapist is friendly and lets me talk, it feels so good to get it all out. I had to write a list with things that may be able to distract me in case I worry to much about something and can't let go of it (my issue). Today we will also do some breathing exercises for my upcoming flight. We talked a lot about my fear of flying aswell and sure enough I am not even nervous about my flight in 2 weeks yet. I still don't like the thought of it, but I am not panicking. YAY! Hope it'll stay that way. After therapy I will actually meet up with a new German student, hopefully it can become a regular thing. She sounded pretty nice and I would love to teach again.
Last Thursday Jim and I went to see The Phantom of the Opera by Broadway across America. I had wanted to see it since I was little...and the show was great. I loved every minute of it. We were all dressed up and everything, and time just flew by. The music was beautiful and the stage was set up amazingly. Definitely the best musical I have seen so far!
We also looked at some more houses on Saturday. It is getting really tiring for us, we do not enjoy looking anymore. Hopefully we will find something soon. However, we decided to not talk about the chicken before it's hatched, we do not want to waste any excitement over something that just might not happen again. So, once we know something for sure we will talk about it.
And on Wednesday, Susi is finally coming here. I am so excited, I haven't seen her in so long and she is making this huge trip just to see us. I can't wait!!! Again, I'll have great company until further treatment, what more can I ask for? I wish it was Wednesday already!
Well world, that is all I can come up with for now. I'll talk to y'all one way or another.
Love, Julia
PS:Does anyone watch "Dance your ass off!"? Can't wait for tonight's new episode. Love this show!! :)
Sunday, July 5, 2009
My randoms / 0815
Our new bigger better TV to get delivered already. We ordered it from Overstock.com, it was quite a bargain and I can't wait to hook it up!
*I am hoping for:
sunshine, but preparing for rain. You never know what life throws at you, I am still trying to take it one day at a time.
*I am dreading:
1)the fact that I have to stop taking my hormone pills tomorrow as well as start a low iodine diet which means I won't be allowed to eat anything salty for 14 days. They put salt in EVERYTHING! I will basically live of fruits and vegetables, some meat, nuts and diet coke.
2)having to do some more house hunting. The only thing I know is that I do not want to stay in our shitty little rental property for another year, I want to move in our own house. But it's getting sooo tiring and boring, hopefully something, a nice house that is, will come up soon.
*I am oh so very looking forward to:
seeing my parents!!!!!!!!!!!!!!!!!!!!!!!!!! only 22 days to go!!!!!!!!!!!!!!!!!
*I am afraid of:
too much. will change that soon due to an increased desire to enjoy life to the fullest and not let my fears hold me back. Go me!
*I am thankful for:
-my husband who not only loves me despite all the drama I have brought in his life, but also is my rock, cheerleader and best listener without complaining. Ever. IOU!
-being able to be treated at one of the best cancer hospitals in the world
-having my family and friends close no matter the distance
-having good health insurance
*I am convinced that:
everything happens for a reason
*I am:
a wife, daughter, sister, friend, cat-owner, dog-lover, neighbor, avid reader, cancer-patient, German expatriate, humorist, believer, chef in no particular order. I am coming to terms with my life, who I am and what I want. I will not be so foolish again to attempt planning because I sure have been shown that life just does not go as planned. But I have dreams in me and love and passion and all that is left to me is, again, hope for the best.
*I am not:
a crowd pleaser, political person, patient patient, mother, same person as I used to be. I just am what I am and most of the time I wouldn't want it any other way.
Thursday, July 2, 2009
Check-up
Love, Julia
Wednesday, July 1, 2009
Hehe
Here is something I've been meaning to post for a long time, it is something I think about about 34 times a day, I love it and it helps me a lot:
God, grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference.
Love, Julia
Tuesday, June 30, 2009
I'm telling y'all...
Greetings from UnderTheWeather,
Julia
Monday, June 29, 2009
Update
Here is a picture of my neck, taken 2 days ago. The incision line is about 16 cm long:
Thursday, June 25, 2009
Letter to my grandfather
I wish I could still hold your big hands like I used to when I was a little girl. When just your hand reaching out for mine meant that there was no problem in the world I would have to face alone. There are so many things I wish I could have told you when you were still only a short walk or a 2-hour-train-ride away. I miss your deadpan humor and your big bear hugs. I miss your old-man-smell and the comfort and warmth I felt when you opened up the door for me, no matter when or why I came to see you.
My dearest childhood memories incorporate spending my days with you in the backyard of your house, rummaging around in the yard and me, playing and helping.
I remember our errands downtown in the morning when you had that old beat up leather bag you had used to carry home the eggs when you were young. When we were there early enough for only very few people to be around, you would act all silly with me and do the funniest hop, kicking your feet sideways and sometimes even sing.
You taught me that it is important to show other people respect and to think before I talk (I am still working on that one!) and that it doesn't matter what other people think of me.
I will never forget our trip to Austria in your brandnew car. I got travelsick and your comment, before pulling over quickly, was "Don't you throw up in my new car!" And when we stayed with you while my mom and Oma were gone, you reheated food Oma had prepared. You served us dry and sticky spaghetti with sauce that burnt when reheating. To this day I love dry spaghetti with that burnt sauce! When I fell and whimpered, I heard a harsh "Do you want to get your leg amputated???" (no!) "then shut up!!!" when you put on the disinfecting spray on my wound. And when noone was looking, you gave me candy or some money and were sure to urge me not to tell anyone. Understanding your ways even more now than back then, I know how much you loved us.
I remember your inability of saying the words "I love you" but showing it in your own way even more. I so truly miss you and to this day still don't want to believe that you are not around anymore. I take pride in being your youngest grandchild, being part of your family. In the past few years of your life I said some things that were young and foolish because so was I. I wish we could now share a glass of wine together and laugh at those times. Even though there are many things that only now I start to understand, I wish you were still here.
You probably wouldn't have approved of me marrying an American man and moving here but I would've known that deep down all that mattered to you would've been that I was happy. And you'd probably worry sick about me these days and not be able to express that either... There are so many things I experience that I wish I could share with you. You were the finest old man I ever knew. Know that I love and miss you dearly to this day.
Deine Julia
Sunday, June 21, 2009
Guess who's back!!!
The surgery on Monday went well. It took about four hours. When they rolled me into the surgery room, I had just changed my mind and got ready to hop off the table. When the anesthesiologist asked me how I was doing, I creaked out a "I'm so scared" and boom, out I was for the count. The next thing I remember was waking up and seeing Jim's face over my head.
I remember the days in the hospital as a blur. I guess they drugged me up pretty good. Right after the surgery, I slept a lot and the next day, I was on Morphine feeling just fine. My calcium levels were pretty low so they hooked me up on the IV--I had a bunch of tubes on me, I guess it was a pitiful sight. I started moving around and going for little walks around my unit on Wednesday. My sister flew in on Thursday, so she was there to witness me passing out in the bathroom because I did not tolerate the Magnesium IV very well. Sure enough, the first thing I said after regaining consciousness was, "I wanna Snickers Ice cream bar... or a leberkaessemmel." :D Ever since I have been off those stupid Magnesium infusions, I feel strength and energy slowly coming back to me; however, I'm still pretty stiff, walking around like a zombie in Michael Jackson's Thriller video. But everyday I'm getting better. The pain is less now that the drains are out, and I just need to get my head around everything that has happened. The doctor's say I'm healing very well and Jim is taking very good care of me, so I should be back to normal and as good as new in no-time. Thank you everyone for all of the flowers, cards, e-mails and calls. Feeling so loved helps me a great deal in getting better.
I hope I will hear a lot from y'all in the next few days. With Jim at work, I will need your entertainment. I hope all is well. Love, Julia.
Sunday, June 14, 2009
Off to the hospital
Love, Julia
Thursday, June 11, 2009
Less waiting time wohoo!
My "old" best buddy Linda is about to leave me again. I really wish she could stay longer, we're having so much fun every day and I am getting sad already just thinking about her leaving on Saturday.
I got my new laptop 2 days ago and I'm seriously in love with it. And, my latest purchase (ever heard of retail-therapy? Working wonders for me, that one!!!!!) came in the mail today, gotta show you this one:
I love it! It expresses my feelings so well, and as most of you know, I wear my heart (or should I say pottymouth?) on my sleeve! ;o)
Take good care my beloved friends and family!
Love, Julia
Monday, June 8, 2009
Happy anniversary!
Jim,
thank you for two wonderful years of marriage. I never thought I would meet and marry someone as kind, caring and understanding as you. I am madly in love with you and I always will be. Here is to many, many more years full of love and happiness for us. I would do it all over again. I love you Hase, happy anniversary!!!
Today it's been 2 years that we have been married. And it feels so much longer - but in a good way. We have been through so many ups and downs, I couldn't ask for a better man. Granted he still does and probably always will drive me nuts every once in a while, I've learned to appreciate even that part of our so unique relationship.
Last night I painted messages on Jim's car with red car chalk to surprise him when he'd go to work. Apparently all his colleagues said happy anniversary to him, too! lol And I bought a T-shirt that reads "My husband rocks!" and wore it today. I think he liked it. I thought it was pretty neat. Until he whipped out those stunning diamond ear studs. That man! Full of surprises! I felt a little bad with my lousy car painting and the shirt but he said he loved it. :)
Linda pretty much forced us to go out to eat alone to celebrate so we went to PF Chang's tonight. It was deliiicious! Those chicken lettuce wraps are awesome, I could eat just those there. It's been a lovely first anniversary together and it showed me once again how WELL worth it was to leave Germany to live here with him.
We have been pretty busy doing things with Linda. She had us go to Joel Osteen's church again on Sunday. Apparently, after going there 3 times they consider you a member there, so we are members there now. Not sure what to think of that. I love what he says and how he conveys it. The rest is a little too much. But it was definitely fun to go. Sunday night we met Ron and Jonell at Olive Garden. As always it was really nice to see them. We also went to the zoo, went for long walks in the park (in the TX heat! you can tell how much I love Linda!!!), went downtown and so much more. Every day something new. I just wish time wouldn't go by so fast.
Not only was it our anniversary today, I also received an awesome surprise gift from the world's best mom! MY MAMA!!! Well I have only her, but you know... ;o) She sent me shoes that I told her about, scarves for after the surgery so I don't have to show the wound all the time and 2 Michel aus Lönneberga DVDs. One of my favorite shows when I was little. Thank you so much Mama for this awesome surprise! You rock!!!
Here are some pictures from the past few days.
Ready to go to Lakewood Church:
Mikey's cuddle attack:
Too cool! Taking a picture like my students do:
At the Houston Zoo:
Looking up the Chase Tower:
Pimping the anniversary ride in the middle of the night:
The husband with my artwork:
Me, all happy about my new diamond ear studs. *BLING*
Thursday, June 4, 2009
1 month in
Not even 2 weeks until surgery. I am currently looking for some things for after the surgery, such as a nice pill dispenser. Hopefully I can find one online. I also need pillows/cushions, maybe a step to get in our huge bed and some more stuff. Still waiting on the laptop. Hopefully it'll come in time. The current thought in my head is the sound of cutting meat with scissors. I wonder if that's what it will sound like when they pop my neck open like the top of some push-open toothpaste? Nauseating thought, I know.
On a non-cancer note, I am so very happy Linda is here. We enjoy each other so much. There should be a law against separating best friends for that long a time! Yesterday we went for a long walk in the park (and in the Texas heat!). It was really lovely, made me realize that I do wish I had some friends like her here. The husband's company is priceless and yet, I hope I will make some friends soon. Maybe a fellow cancer patient? Oh no, down the cancer road again...
We had dinner at Cici's last night. Do they have those all over the U.S.? Not sure. It was good and we tried to hook Linda up with one of the pizza boys, apparently he felt stalked by us and took off before "we" could ask him out. :D
Today we are planning on going to the Galleria mall. Also, but I still need to ask Linda about that, I'd like her to return my old boss's stuff to her. Hopefully she'll do that. And tonight I'll be teaching my last German class for the Bonzenkinder. I can't believe it's been a year and I must admit I am a little sad. I got attached to them over time. I'm sure their sadness won't show much. ;o)
Love, Julia
Wednesday, June 3, 2009
Every day is a gift, not a given right!
The appointments at MD Anderson on Monday went fine. No bad new findings, wohoo! Just a little nuissance: They planned on giving me the radioactive pill on July 21. Ummm I sort of want to catch a flight on the 26th and I told them that. I hope something can be changed, because I really want everything done before Germany. We're still in the process of figuring everything out. I'm sure we'll find a good solution.
Having Linda here is a real joy. It is so nice to have someone here to talk to and hang out with and to do stuff with. I wish it wouldn't have to end. On the other end, I cannot wait for surgery day. In 2 weeks I'll probably be already at the hospital at this time. WUUUUUUUUAAAAAAAAA!! The closer it gets, the more nervous I get. But I made it pretty much clear to the anestheseologist that I will haunt him forever if he kills me... ;o)
On an entirely different note, we purchased a new laptop for me. Maybe I'll even get it before the surgery, but if not I definitely will for the flight to Germany. Check out the product demo, I think it's super neat:
http://www.shopping.hp.com/webapp/shopping/store_access.do?template_type=series_detail&category=notebooks&series_name=tx2z_series&aoid=33487&kw=hp+touchscreen+laptop&tafcjnef=fy09&ppc=CCp25703097
Can't wait for it to arrive! I'm still waiting on all my cancer literature from Amazon, they sure are taking their sweet time with that shipment. Odd!
I think Linda is still asleep, so I will be online a bit. And then I'll talk to my Mama, a highlight every week. I'll post pictures of me and Oma Linda soon! :D
Happy late birthday Svenja! I did not forget!!! I hope you had a great birthday!
Love, Julia
Sunday, May 31, 2009
Blog quickie
Yesterday, my best friend Linda finally came here all the way from Germany. I thought I'd never be able to find her in that overly busy international arrivals hall at the airport. But, luckily enough, after one and a half hours she came out. I am very happy she's here. She's such a joy to be around, our timing could not have been better. When we booked her flight, we didn't have a clue yet about what crazy times it'll be these days. Jim and I tried keeping her up as long as possible and she did a great job staying awake.
Being what I call a hardcore Christian, she's hauling us back to Joel Osteen today. I bet my in-laws will be laughing at this one because we were not too thrilled about everything going on in his mass. He's the best preacher I've ever seen, but all the dancing and clapping and hugging...so not our thing. But I'm looking forward to his sermon, he might just say something that really helps me in my situation right now.
On the cancer stuff... I have more appointments tomorrow. I'll see my endocrinologist (phew! finally got that word down!) for the first time, do more blood works, have the anesthesia assessment and meet the anestheseologist. Of course, being a good patient, I have a list of questions ready for them aswell. Linda will come to MD Anderson with me so the wait won't be so boring this time.
That's about it, really. I hope you all are doing well, I miss hearing from some of you... Enjoy what's left of the weekend!
Love, Julia
Friday, May 22, 2009
Hooray for thyroid cancer!
Yesterday, I finally had the appointment with my surgeon, Dr. Grubbs. Jim was able to come with me so the wait was not too boring. We talked to several nurses etc. and I must say everyone working at MD Anderson is very friendly and skilled and positive. Since very sick people is everyday business in cancer city, it feels rather normal to talk about having cancer. Everyone there has been through what I am going through. Everyone knows what I'm talking about. To me, this facilitates going there a lot.
Anyway, we talked to Dr. Grubbs and asked her our 40+ questions about my prognosis, the surgery and long-term treatment. Turns out the fact that the cancer cells seem to have spread to at least 2 lymph nodes on my righthand side does not worsen my prognosis. The MD Anderson pathology has confirmed the previous diagnosis from the other hospital. Which is something I am happy about, since papillary thyroid cancer is the best-curable kind of thyroid cancer. The tumors usually grow slowly which means I've probably had that thing in me for years without having a clue!
Here is the long-promised picture of me with my head all the way back. The bump on the left of the center of my neck is Mr. Cancer himself. Can you see it?
My surgery has been scheduled for June 17. It will take approximately 5 hours if they have to do the lymph node dissection, too, which is more than likely going to be the case. I will have a little drain tube in the neck for a few days (just the mere thought of that makes me throw up in my mouth. I cannot take seeing cuts on my body, not to mention TUBES! YUCK!!!) and I'll have to stay in the hospital for about 3 days. Those times periods are all just estimates, of course, it all depends on how I'll be healing. Both my sister and Jim's sister said they would try to come here. I hope at least one of them will be able to come here, we need all the support we can get.
Also, I kept bugging that poor doctor about my flight to Germany on July 26. According to her it is 95% certain that I will be able to go home. I AM SO THRILLED ABOUT THIS! I couldn't think of a better rehab place than home.
About 4 weeks after the surgery, when the wound is fully closed and I'll be up and running again, I'll have to take a radioactive iodine pill. The iodine naturally goes to the thyroid tissue, since that is where it is needed in the body to produce hormones. As a matter of fact, the radioactive iodine is given to rid the body of any type of thyroid tissue left. This includes malignant tissue wherever a.k.a. spread. I will have to be isolated from anyone normal, i.e. anyone with a thyroid, for 24-48 hours. After that I should be fine and hopefully cancer-free. Of course there will be check-ups every 6 months but I have a good chance to be cured for a looong time once I'm done with this.
Picking up that lucky-thought again... I am so happy I do not have to get chemo therapy done. I am so thankful for getting the best treatment available for this disease. And of all the cancers out there, I think mine is by far the best. So, hooray for thyroid cancer! :)
Tomorrow we are going to Dallas. Haven't been up there in a while and the occasion is a real bright spot: we will be able to see my dear friends Mona and Chris. I'm so excited, it's been almost a year since I've last seen them. And there is a German bakery in Dallas AND a doner place. I certainly will make use of the cancer-induced no-weight-gain-period this weekend! :)
Also, my best friend is coming next Saturday. I have so many great things to look forward to. It's funny how now every day is a gift and despite all my pains and fears and nuissances I am happier than ever. Each day is a gift from God and I AM SO AWARE OF IT NOW. I better stop writing here. I am getting too thinky...
Take good care y'all. And if you have time, throw in a little prayer for me would ya?
Love, Julia
PS: And one more. The Hase and me at the Cheesecake Factory last weekend:
Thursday, May 21, 2009
BAM! BAM! BAM!
Anyway, the night from Tuesday to Wednesday I only got about 3 hours of sleep. My mind was racing and mulling things over and jumping back and forth, pondering options, pondering possibilities. I kept waking up. So I woke up even earlier than I had intended and made it to my appointment just fine. The hospital is an insanely big place but pretty well structured so I had no problems finding the right offices. At first I did all the paperwork (among that an agreement that MD Anderson can use everything they take cut out of me for research. Alrighty then.), then my bloodwork got done. The wait time was not bad anywhere, although there were hundreds of people. Most of them looked very, very sick. Some looked like this was going to be their last place they turned to... Just made me think how I stood out there, all young and healthy looking and everything. And yet I was one of them. With the little "cancer patient" wristband and all.
After my blood got drawn I went to the radiology department for my ultrasound. It was the looongest ultrasound of my life and not very pleasant either. The us-technician did my entire neck veeery thoroughly. I have difficulty swallowing and breathing as it is and it feels like i have a very sore throat. So getting all the pressure over and over again was not a nice feeling. I kept talking to her and asked her what all that was and if it looked ok and it did. Until she said that 2 of my lymph nodes on the right side (the tumor side) looked suspicous. So they decided to do a biopsy to find out if the thyroid cancer cells had spread into my lymph nodes. After only about 20 minutes of waiting I got the result: positive. The lymph nodes contain thyroid cells, meaning the cancer has spread. BAM! Yet another piece of bad news. I didn't know what to say and pretty much fled this scene of misery. I just wanted to go home. I had been there for almost 5 hours anyway.
After I was over the initial shock and all the crying I researched some more. Many websites suggest that with thyroid cancer, spread to the lymph nodes is not only rather common but also not as bad news as it would be with another cancer. I'm not really buying that one yet, I will ask the surgeon about that later on today. I don't really feel ready to go back to cancer city again, but I certainly want the surgery scheduled. And they better let me do that today. I try to stay strong. But, frankly, I'm having a fucking hard time doing so. It was just yet another blow and I do not know how much more I can take.
Saturday, May 16, 2009
Adding image
Tuesday, May 12, 2009
May the force be with me
I started tutoring again yesterday which is just great distraction I must say. The kids are just a joy to be around. The mother, however, I still cannot stand. She's one of those "I married rich, I am so cool" people. Ridiculous. Anyway, since I missed all last week's lessons I wanted to talk to her about also tutoring on Wednesdays and of course she asked about the cancer story. I told her, showed her and just talked a bit about it. Sure enough she says "You're lucky huh". And I was just thinking: WHAT? I couldn't believe she had said that. How could I be lucky? I had just told her about me being sick. And I thought about it on the way home. And sure enough, I thought to myself that this lady was probaly right. Everyone who knows a little bit about cancer says that if you ever have to pick a type of cancer, pick thyroid cancer. They have the best treatment options for it. You can live without your thyroid. Thyroid cancer is not likely to spread and if it does, there is a radioactive pill that can take care of a lot. I've started thinking that she is right, that I AM indeed lucky.
Also, I talked to one of the girls on the forum yesterday and she said something, that's lingering in my head: Cancer is not an acute disease. I do want that thing out big time, but it is not acute!
And then, I also made a decision:
I will not give this cancer any more life or meaning than it has already stolen from me.
I'm telling you, all those ideas and trying to achieve a healthy mindset and live normally is hard work for me. But unlike last week, it doesn't feel like I cannot possibly live through it anymore. I know I will.
Before I end this I want to thank everyone for your support. It is so nice of all of you to lend me your ears and encourage me and be there. It means the world to me!
Yesterday a lady from Jim's work gave him a picture for me. She had made a little scrappage with a German poem on it. She'd said that they are praying for me, that noone should go through this and that was why she had made me the picture. I couldn't believe it, I've never even met this lady! Truly amazing...
Sunday, May 10, 2009
Insert title here
At home Jim wanted some pizza so I popped one in the oven. I then watched "You've got mail" and he did school stuff. I had wanted him to pause school for this month so we'd have more time but for some reason that didn't work out. So I didn't see him much anymore last night and went to bed at 10.30. And now I am all ready to do stuff. As you can tell, life is becoming more normal around here again. It seems a bit surreal, but I guess noone can take freaking out for longer than a few days. I am going back to work tomorrow so that will be some distraction right there. Only 10 more days until my first visit at MD Anderson Cancer Center.
Friday, May 8, 2009
My emotional roller coaster
As far as my appointment goes, I have an appointment at MD Anderson on May 20, they will do another ultrasound and bloodworks. On the 21 I will see Doctor Grubb, I am hoping and praying that he will be able to tell me more and give me a surgery date. They need to get going on this, it seems every day I feel that thing more and it's driving me nuts!
I can't believe how much for the worse this year has changed for us. I started out so great with me finding a job, getting LASIK done, getting a car, my license, working a lot... Jim and me were very happy. Then, my boss at work pretty much turned into satan until I couldn't take it anymore and quit. And then we were not able to get the house we wanted, which was a big blow. The owner's asking price was more than the appraised value of the house and he was not willing to go down a single cent. Just yesterday I learned that there is an option pending on this house, meaning someone else is in the process of buying it. GRRRRRRRRR!!! And then, I got this stupid, stupid, stupid cancer diagnosis. Not sure if I am more pissed off about this or if it just scares the daylight out of me. I think it's a mixture of both...
It's time for those to sleepyheads to rise and shine! I hope today will be just as nice. Jim doesn't have to work today, so we will be able to do something together. Everyone who reads this have a great weekend! I'll put on pictures soon.
Wednesday, May 6, 2009
I can feel it
What all doctors said who I've seen so far: "Be happy that it is in your neck and you found it so early. If something grows on the inside of your body beyond visibility, in the stomach for example, it usually does not get detected for years. And then, it is often too late." So I try to focus on all the positive things: I am young, otherwise as healthy as can be, thyroid cancer has a very good chance to be cured, over 90% of people survive it just fine.
If anyone is interested in a good article about it, check this out:
http://emedicine.medscape.com/article/282276-overview
Also, I talked to the scheduling lady from MD Anderson again this morning. I can have an appointment with a different doctor who, however, works in a team with Nancy Perrier, as "early" as May 21. Well that sure sounds a lot better to me! I agreed to it and am now waiting for confirmation. I would still get through two weeks until then but I will be able to do that. Somehow. I hope I can get this appointment, right now they are talking to my insurance. That's another thing on top of it all, I have to worry about the financial means to cover the expenses to cure me. What the hell! What is a live worth?? And how much is too much? I refuse to think about this anymore. I hope time will go by faster with my sister here. I'll keep posting the latest news. Ciao for now.
Tuesday, May 5, 2009
The support is overwhelming
Day 2
I am trying hard to not lose my cool and figure out the best way to handle all this. It sure is a reality check to get a diagnosis like that. Makes every other problem seem so small, ridiculous and meaningless. I wish my mother could come here, but she just had varicose vein surgery and therefore is in no condition to fly. My best friend Linda is coming in late May though, I cannot wait for it. I try to keep myself entertained as much as I can although I do not work again because I am still too occupied thinking about that asshole cancer. After all I was only diagnosed about 30 hours ago. I am planning on going back to work soon. By the way, papillary thyroid cancer is rather curable with a survival chance of over 90%. Still, I feel right now I am closer to death than ever before. It is scary, but I am getting through this. I am determined to kick that fucking cancer’s ass!!!!!!